Burden of Care of Filipino Children with Epilepsy and its Impact on Quality of Life, Anxiety and Depressive Symptoms among Caregivers


Background: Caregiver burden and its impact on quality of life is as important as determining the quality of life of children with epilepsy as these factors influence each other as well as the outcome of these children.

Objectives: The primary objective of the study was to determine the association between caregiver burden and quality of life as well as anxiety and depressive symptoms among caregivers of Filipino children with epilepsy. Also, the study aimed to determine the prevalence rate of caregiver burden, impaired quality of life, anxiety and depressive symptoms in an ambulatory care setting.

Methodology: In this cross-sectional survey, adult caregivers accompanying their pediatric patients with epilepsy at a single tertiary center were recruited. Sociodemographic and clinical data were collected. The participants completed questionnaires for caregiver burden, quality of life and anxiety and depressive symptoms.

Results: Fifty-three caregivers participated with a mean age of 38 years. Most were females, married, unemployed and at least college level. The mean age of their patients was 9.4 years and 71.7% of patients were on single anti-epileptic drug. Lower educational level was less likely associated with caregiver burden. Although impaired quality of life and depressive symptoms were more likely associated with caregiver burden, this association did not reach statistical significance.

Conclusion: The prevalence rate of caregiver burden, impaired quality of life, anxiety and depressive symptoms were 24.5%, 22.6%, 28.3%, and 9.4% respectively among caregivers of Filipino children with epilepsy at a single tertiary center. Lower educational level was the only characteristic significantly associated with lesser odds of having caregiver burden.

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